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make your own informed decisions.
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At the end of the day, we respect  you make your own informed decisions.
Medical Equipment Registry/Electric Company
Energy Plus is an umbrella of programs to address the special needs of our customers.
Registration is required for many of these programs.
To register or for more information, please call 314.554.2478
Ameren will make every attempt to notify customers in the registry about planned maintenance outages. However, customers should
always have a back-up plan in place for emergency outages.
When a customer’s doctor has verified that someone in the household is using electrically operated medical equipment in the home, that
information is recorded in a medical equipment registry, and the customer's account is coded
"Medical Equipment Registry."
Autism Resources
Autism Center,University of Missouri Health Care,Children's Hospital, One Hospital Drive,
Columbia, MO  65212   573-884-1871
Missouri Pain Initiative Pain Information for Caregivers
National Family Caregivers Association   Caregiving Resources   Tips and Tools
Connecting Caregivers
Partnership for Prescription Assistance  
National Institute on Aging
So Far Away: Twenty Questions for Long-Distance Caregivers
National Stroke Association Caregivers and Families
Recovery Fact Sheet Series
Digital TV Answers   HDTV Primer     Be not afraid! We love the new digital converter!
More channels, closed captioning, program info,no monthly fees...Cable? we don't need no stinkin' cable!
How to Do Things
Unlike other how-to websites written by staff writers, 'HowToDoThings’ contributors are hobbyists,
professionals and experts. To put it simply, our articles are written by people who know the best way
to do something. Whether you're an expert at stringing a kite, winning at poker or programming a
computer, you might qualify to be a How To Do Things contributor.
Alzheimer's Guide: Need help now? Visit FrenaGray-Davidson Website.
Access for All   The Personal Care Attendant Guide by Katie Rodriguez Banister  
Visit DoItYourself.com - The Leading Home Improvement and Remodeling Website Featuring the Internet's Largest Hardware Superstore
Compensating Family Caregivers REUTERS Wed Apr 18, 2007 2:35pm EDT
Older Caregivers Fill the Gap By Shari Roan, Los Angeles Times Staff Writer March 3, 2008
WebRangers  find on-line games Activities     WebRangers Scavenger Hunt  just for fun!
This is the National Park Service's site for kids of all ages. If you love our National Parks, Monuments and Historic Sites, this
site is for you. If you are new to our National Parks, we hope this site helps you experience how wonderful they can be.
Home Inventory Software  This software makes creating a home inventory fun and easy.
Once you have completed your inventory, it is easy to keep your information up to date. You can
download the Insurance Information InstituteI new home inventory software for free right now!
Aging at Home With Government Help An  effective and promising approach to
delivering health and social services to a growing number of older adults residing in
Naturally Occurring Retirement Communities
St. Louis NORC is a non-sectarian project of the Jewish Federation of St. Louis.
Got questions? Call 314-442-3834.
Naturally Occurring Retirement Communities) seek collaborative partnerships enhancing
existing services in the community.
Flood Risk Information  Enter your address to determine if you need federal flood insurance.
Flood Safety Checklist~Be Red Cross Ready
St. Louis  WeCar vehicles, all hybrids, are parked in select downtown locations, so you
can choose one that is most convenient to you. Car Sharing by Enterprise Rent a Car.
Prepare for Power Outage    Also see our Grabbag page
Prescription Drug Plans www.medicare.gov/MPDPF
Home Health Agency Compare Information  www.medicare.gov/HHCompare    
Hospice Information and Resource Guide from Health Care Library:
Hospital Compare Web site, please visit:
Well Spouse is a national, not for profit membership organization which gives support to wives, husbands, and
partners of the chronically ill and/or disabled. Well Spouse hosts a website (www.wellspouse.org) with resources for
coping and survival skills, which includes an on-line chat forum for spousal caregivers
COMTREA is a private, non-profit 501(c)3 organization serving the community as a Mental Health Center for
Jefferson County, designated by the Jefferson County Commission. It is also the
administrative agent for the
Psychiatric Services Division of the Missouri ~ DMH (Department of Mental Health) for Jefferson County.
Arnold, MO Office ~ 21 Municipal Drive ~ Arnold, MO  63010  ~Phone: (636) 296-6206  FAX: (636) 296-0102
Kincare Information and resources for grandparents and relative caregivers in a parenting role in the St. Louis Metropolitan Area.
University of Missouri Extension improves Missourians' lives by addressing their
highest priorities through the application of research-based knowledge and resources.
Coordinate an educational program for Adult Children
Top 10 Tips for Women Buying Technology
The least you need to know to shop tech-smart
Cut the grass without the gas     Buy gas-free mowers and help our website.
Subprime Solution?This week NOW on PBS takes a look at the non-profit organization Just Price
Solutions and the man behind it, Brian Cosgrove. Cosgrove identified a problem: many low or moderate
income borrowers were getting steered into subprime scams because they had low credit scores. But these
scores were often low because the home buyers simply didn't take out enough loans or credit cards.
Cosgrove's goal was to help the millions of Americans with lower incomes purchase a home without being
caught in a "subprime" nightmare.
Just Price Solutions JPS was created to leverage NHSA’s 30 plus years experience in community
development financing with proven mortgage processes and technologies. Web based tools allow non-profit,
private sector and public organizations to form collaborative partnerships that were challenging in the past.  
Sustainable, fair and equal access to mortgage financing is now available to those who need it most.
Amedisys Home Health Care Missouri
10805 Sunset Office Drive, Suite L101    St. Louis, MO 63127*** P 314-821-7679
10679 Highway 21    
Hillsboro, MO 63050 ***  P 636-789-4715
Specialized nursing programs such as cardiac, diabetes, pain management, wound care,
infusion therapy, oncology and psychiatric services
Lutheran Family and Children Services, St.Louis, MO     Advocacy
Lutheran Senior Services    LSS In-Home Services   Affordable Housing   
Good Neighbor Program     Hospice Care
ReSale Services benefits the Miriam Foundation
Miriam Estate Sales***Miriam Empty-Outs***Miriam Switching Post ReSale Shop
The Miriam Foundation improves the quality of life for children with learning disabilities
and their families through innovative and comprehensive programs
Miriam Switching Post **2171 South Big Bend Blvd. *Maplewood, Missouri 63117*
phone: 314.646.7737**fax: 314.646.8478**
The Forgetting: A Portrait of Alzheimer's DVD

For Caregivers: spending time together
For grandchildren to enjoy with someone with Alzheimers.(video game)
Alzheimer’s Association St. Louis Chapter     Respite Care
Helpline operates 24 hours a day, seven days a week, in 140 languages. 1.800.272.3900
Our staff is highly trained and knowledgeable about all aspects of Alzheimer’s disease.  
If you prefer, send us a message at
Helpline@alzstl.org. We check the e-mail box M-F and will
respond to your inquiry within 1 business day.
Autism, Asperger's Syndrome, and Related Developmental Disorders Australia


Autism Society Improving the Lives of All Affected by Autism
Autism Society Gateway Chapter ~ 1311 Wells Avenue  ~ St. Louis MO 63119-4727 ~ (Saint Louis County)
(314) 749-7225 (Main Phone)  Ms. Julie Roscoe, President  (314) 266-7786 (Other) Jenny Inman
Fax: (314) 968-3117 E-Mail address: jinman279@aol.com

Earthquake information:   U.S. Geological Survey     Local Earthquake Map     
Missouri SEMA Earthquake Program     Missouri Earthquake Preparedness    Earthquake Multimedia
The Great Central U.S. Shake-Out

Ready IIlinois State of Illinois Plan and Prepare functional needs list of resources
Emergency Preparedness Tips for Those with Functional Needs   pdf
Links to Educational On-line webcasts, forums,
24 hour help-lines, condition-specific-support,
unique service providers, area speakers,
innovative solutions,
consumer information, things that make you think
remember... information is power!
Lotsa Helping Hands is a simple, immediate way for families facing the challenges of long-term
caregiving or caring for an aging loved one to organize and communicate with other family members,
friends, and neighbors. This is a service of the
National Family Caregivers Association
BLOG for Lotsa Helping Hands went LIVE March 31, 2012
Lots of Helping Hands Newsletter Archive
CarePages are free, private web pages that make it easy to reach out and receive messages
of support and to stay connected to family, friends, co-workers and others who care about you
and your loved one. The service is available to anyone caring for a loved one, but may be
particularly helpful to those who have recently found themselves in a care giving role.
Caring for Your Parents  watch PBS April 2nd broadcast on-line.
Tips and Tools  National Family Caregiver's Association's Tip Sheets and How-To Guides
help family caregivers deal with the emotional and practical sides of caregiving. Family caregivers
will also find special web sites tools offering specific help with issues such as locating senior
housing, communicating with family and friends, or information on Medicare drug plans.
Mortgage payment calculator
Facing the Mortgage Crisis: People. Connections. Resources.
Consumer Calculators   Consumer Encyclopedia     Consumer Worksheets
Easy to use, helpful guides offered through the Missouri State Attorney General's Office. Great Stuff!
Mortgage payment calculator.   Home repair     Car Buyers    Life Choices
Life Choices  (36 pages available in pdf for immediate print out) Guide to help communicate end of life wishes,
advance directives, financial considerations and issues faced when you or your loved one dies.
Offered through the Missouri State Attorney General's Office.
Printed booklet also available:order on-line.
Advanced Life Care Directives
Missouri Grandparent/Kinship Caregiver Coalition
Mission: "To raise public awareness of grandparent/kinship care provider
issues; to educate, promote fair and equitable access to resources; and to
advocate for their rights."
Missouri -Financial Relief for Family Caregivers
Links to local faith-based agencies that offer vouchers for utilities, limited financial assistance for rent
or mortgage payments, emergency needs in situations of catastrophic loss (fire, flood, earthquake),
utility bills (water, electricity, gas).
Poison Center :St. Louis  Regional Poison Center*
(314) 772-5200 in St. Louis or 1-800-222-1222 outside of St. Louis
Stand up to Cancer Mission Statement Inspired to act by our own personal experiences
with cancer, we recognize that we can no longer rely on the current system alone to give us the
breakthroughs we need. So, we are calling on the public to help take matters into our own hands,
investing in a revolution that will change the way scientist and clinicians work to understand and treat
these diseases. Stand Up To Cancer is more than a rallying cry. It is a galvanizing force created to
urgently move cancer research forward.
Connecting Caregivers to Medicare Resources
Medicare Patient Request Form for Medical Payment
You should only need to file a claim in very rare cases.

Medicare claims must be filed within one full calendar year following the year in which the services were provided. If a claim isn’
t filed within this time limit, Medicare can’t pay you its share. For example, if you see your doctor on March 22, 2009, the
Medicare claim for that visit must be filed by December 31, 2010. Check the MSN you get in the mail every three months to
make sure claims are being filed in timely, if they aren’t:
Contact Your Doctor or Supplier and ask them to file the claim.
If they don’t file the claim, call 1-800-MEDICARE and ask for the exact time limit for filing a Medicare claim for the service or
supply that you got. If it’s close to that time and your doctor or supplier still hasn’t filed it, it’s time for you to file a claim on your

Medicare Coverage of Durable Medical Equipment and Other Devices - 11045
How to File a Claim        Details and Instructions for CMS 1490S
The Society of St. Vincent de Paul St. Louis Council is a non-profit organization
providing personal assistance with furniture, food, clothing, rent, utilities, transportation and
companionship to people facing economic, emotional or spiritual crisis. An essential part of the
Society's work is to provide help while conscientiously maintaining the confidentiality and dignity of
those who are served.
Programs and Services
Society of St. Vincent de Paul   Administration Office: (314) 881-6000   
Intake & Referral Line: (314) 531-SVDP (7837)  Fax:(314) 531-6712
100 N. Jefferson St. Louis, MO 63103   
Designs On Time
Pam Vaccaro,Certified Professional Speaker,  is president of Designs on Time.
Her company challenges individuals and companies to rethink traditional time
management and provides insights on how to adjust to the revolutionary effects
technology has had on managing time and staying organized.
Customized Caregiver Training & In-home Consultation, Education & Outreach, and Geriatric Care Counseling.
1526 S. Big Bend Blvd.St. Louis, MO 63117 PHONE(314) 645-MCHS (6247)FAX (314) 645-6249
Toy Tips with Marianne Szymanski
Parkinson Disease Respite Care Program
The St. Louis American Parkinson Disease Association Information and Referral Center is located in the
Department of Neurology at Washington University School of Medicine. It is one of the largest among the
American Parkinson Disease Association Centers in the United States.
The primary function of our Center is to serve as a central location where people with PD, caregivers, medical
professionals, students and other interested individuals can call or write to receive the latest information...
APDA Parkinson Center  ~ Campus Box 8111   ~   660 S. Euclid Ave.  ~ St. Louis, MO 63110
(314) 362-3299
Monday - Friday, 7:30 AM - 4:00 PM
cancer support, education & hope
providing free support, education, and hope for people with cancer and their loved ones.Through
mind/body programs
The Wellness Community of Greater St. Louis utilizing the
Patient Active Concept, people affected by cancer learn vital skills to is part of an international non-profit
regain control,reduce utilizing the Patient Active Concept, feelings of isolation, and restore hope −
regardless of the stage of the disease.
MISSION: To help people affected by cancer enhance their health and well-being through
participation in a professional program of emotional support, education and hope.
Upon the referral of a doctor, nurse, or medical social worker, many items can be ordered by The Wellness Community and
sent directly to the patient within a few days.
Items such as wigs, bras, and prosthetic devices require a voucher which can
be used by the patient to make the purchase. All bills are paid by The Wellness Community’s Staenberg Family Foundation
Cancer Services program. Due to limitations in funding, each patient is limited to one wig, one breast prosthesis, two
mastectomy bras, and one lymphedema sleeve and glove per year. Patients must reside in St. Louis City, St. Louis County,
St. Charles County, Jefferson County, or Franklin County in Missouri or Madison, Monroe, or St. Clair Counties in Illinois.
Lauren's Hope is a very special line of jewelry. We offer fashionable medical identification jewelry that everyone can feel good about wearing.
We really try to offer a style that will appeal to everyone. No one should be embarrassed by their medical identification bracelets. Lauren's Hope tries
to find acceptable alternatives that combine safety with style. We proudly offer custom medical alert jewelry and several alternatives to bracelets, such
dog tags and guitar pick necklaces. We even have special medical ID jewelry for children. Please take a moment to explore our site.
We have articles that will explain more about the many styles we offer and why they are unique. Of course, you can always browse our online catalog
of stylish medical jewelry.
Assistance to Parents of Children With Disabilities: Missouri Bar Association
Jefferson County Service Center   3880 Jeffco Blvd.   Arnold,MO 63010
American Red Cross LIFELINE
American Red Cross Lifeline gives  subscribers the confidence and freedom to live on  their own,
because there is always someone standing by to help whenever needed .
This Personal Emergency Response Service (PERS) is provided by the American Red Cross in
collaboration with Lifeline Systems, Inc., and is available to  subscribers
24 hours a day, 365 days a year. Get peace of mind . . . get Lifeline.
Jefferson County Health Department, Jefferson County Missouri
1818 Lonedell      Arnold, MO    office 636-282-1010   FAX:  (636) 282-2525
Clinic Hours Check our calender for Flu Clinic Dates. Calendar
The cost of the flu vaccine will be $25.00 for adults and children.  We accept the following forms of payment:  Cash, Check, Visa and Master Card.
This year we will also offer the High Dose flu vaccine for ages 65 and older.  The cost of this vaccine is $45.00.  
Aetna, Humana, Railroad Medicare, State of Missouri Medicare Part B and UMWA.  Please make sure to bring in all of your insurance cards
FLU  2013-2014 Flu Season CDC information about the season's vaccines,
vaccination recommendations and disease activity.
Caregiver Stress Quiz   AARP.org CAREGIVING
Navigating the World of Caregiving
Long-Term Care Cost Calculator
Families for Depression Awareness helps families recognize and cope with depressive
disorders to get people well and prevent suicides.
Depression in the Family Audio Podcast Series
The Home Affordable Refinance Program provides homeowners with detailed information about
these programs along with self-assessment tools and calculators to empower borrowers with the resources they
need to determine whether they might be eligible for a modification or a refinance under the Administration's
program. Through this website, borrowers can also connect with free counseling resources to help with
outstanding questions; locate homeowner events in their communities; find a handy checklist of key documents
and materials to have ready when making that important call to their servicer as well as FAQs from borrowers in
similar circumstances; and much more.

The National Caregivers Library was created by FamilyCare America, Inc. and is the largest single source of
information and tools for caregivers and seniors in the country.  It makes it resources available to caregivers for free
through alliances with professionals, businesses and other organizations who serve seniors and their caregivers with a
variety of products and services.  
The Long Term Care Ombudsman Program of Saint Louis (LTCOP), a United Way
agency, is part of a nationwide program which began in 1971 in response to public outcry over abuse
and neglect in long term nursing home facilities.  phone:314-918-8222
Cardinal Ritter Senior Services CRSS promotes a nurturing environment that
recognize every person's dignity and provides security, advocacy and independence.
Home Helpers provides help for new moms and families,
those recuperating from illness or injury and those facing life-long health challenges of any age.
Home Helpers serving St. Louis Mid-County, West County and South County
Home Helpers Serving St. Louis North-County, St Charles County, and Southwestern Illinois
636.448.3641 (MO)
618.462.2762 (IL)
877.445.4353 (Toll Free)
Breakthrough Coalition has a long  history of  providing support to older adults. Formed in 1991, the coalition
began with a  handful of agencies wanting to simplify the "system" of care and support for  older adults.
Today, Breakthrough welcomes more than 200 agencies and  individuals who participate in the mission.
Breakthrough Coalition general membership meetings are held the first Tuesday of every other month starting in
February of each year. Meetings are held at the Maryland Heights Centre (2344 McKelvey) in St. Louis County, MO.
Serving Seniors in the Counties of St. Louis, St. Charles, Franklin and Jefferson Since 1973.One of 10 Area Agencies
on Aging in Missouri, MEAAA is governed by a 23-member board of directors and served by a 24-member advisory
council. Funding is provided under the amended Older Americans Act of 1965 and administered by the Missouri
Department of Health and Senior Services.
Mid-East Area Agency on Aging      14535 Manchester Road       Manchester, MO 63011-3960  

Please call us for more information!  
St. Louis County: (636) 207-1323  
Senior Centers in St. Louis County MO

St. Charles, Jefferson, Franklin Counties:
Toll-free: 1 (800) AGE-6060
Senior Centers in Jefferson County Missouri     Franklin County Missouri    St. Charles County MO
Day Clubs  for Adults
in Fenton, MO Bon Vivant Adult Day Club $78 a day
1525A Bowles Ave  ~  Fenton, Mo 63026 ~(636) 343-1600
Angela Denicola  ~     angela@bonvivantclub.com  
Mederi Caretenders
Provides skilled nursing and physical, occupational and speech therapy services primarily to Medicare beneficiaries;
and Personal Care, which provides custodial and personal care services.  
Services are generally covered by federal and state government programs, commercial insurance and private pay.

655 Craig Road, Suite 140  * St. Louis, MO 63141 * Phone: (314) 991-2377  * Fax: (314) 991-1055 * (800) 991-2377
Be Active! Visit www.cdc.gov
Beyond Driving with
The workbook for the
families of older drivers
by Matt Gurwell,
Founder and CEO of
Keeping Us Safe,LLC
purchase on-line
$27.95 plus shipping
and handling
90 + pages ~ click
here for
table of
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Family Caregivers
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Visiting Nurse Association
11440 Olive Boulevard Sutie 200
Creve Coeur, MO 63141
HOSPICE CARE (314) 918-7171 Monday through Friday from 8:00 am to 5:00 pm. Patients
and/or their families have the right to choose their hospice care provider.
VNA provides hospice services without regard to the patient’s ability to pay. VNA is a charter
member of United Way of Greater St. Louis and receives funding via personal donations as well
as community support to help provide services for those who do not have Medicare, Medicaid, or
private insurance or who are under-insured.
Infusion therapy in the comfort of your own home. HomeChoice Partners, Inc.
•Antibiotic Therapy•Antifungal Therapy•Antiviral Therapy•Blood Derivatives•Blood Transfusions
•Heparin/Anticoagulation Therapies*Hydration Therapy•Inotropic Therapy•IV Immune Globulin
•Pain Management•Parenteral Nutrition•Miscellaneous Injectables•Specialty Infusions (Remicade®, Tysabri®)
St. Louis HomeChoice Partners, Inc. www.davita.com/homechoicepartners/ 528 Trade Center Blvd.
Chesterfield, MO 63005
Contact: (636) 812-0444 or (877) 509-1214
Fax: (636) 812-0434
Attorneys Helping the Elderly and Persons With Disabilities.
St. Louis Elder Law Attorneys
Guardianship and Conservatorship    FIDUCIARY ADVOCACY/LITIGATION    Probate
Long-term Care Planning-Protection of Assets and future in-home or nursing home care can be done both
long term and short term.
MO HealthNet - (formerly Medicaid)MO        Veterans Benefits
Special Needs Planning- Setting up a Special Needs Trust
Martha C. Brown & Associates, LLC  Attorneys at Law  
Alicia A. Albus led a round table discussion at our Annual Family Caregiver Workshop in 2010 and 2011.
220 West Lockwood, Suite 203
Webster Groves, MO     63119
(314) 962-0186
intellectual and developmental disabilities and actively supports their full inclusion and
participation in the community throughout their lifetimes.
We are the largest national community-based organization advocating for and serving people with intellectual
and developmental disabilities and their families.  We encompass all ages and all spectrums from autism,
Down syndrome, Fragile X and various other developmental disabilities.
Governed by a volunteer board of directors and managed by key staff of The Arc, we work passionately to
uphold our vision that every individual and family living with an intellectual or developmental disability in the
United States has access to the information, advocacy and skills they need to participate as active citizens of
our democracy and active members of their community.
National Office~The Arc~1660 L Street, NW, Suite 301~Washington, DC 20036
Phone: 202-534-3700 / 800-433-5255  ~  Fax: 202-534-3731

http://www.slarc.org/site/1/home.aspx  St. Louis, MO ~   theARC  ~ 1177 N. Warson, St. Louis, MO  
Phone: (314) 569-2211     ~     Fax: (314) 569-0778

For Jefferson County Missouri see Next Step for Life
NextStep for Life
quality and dignity; offering a comprehensive range of integrated support services, and providing professional,
progressive programs and services. While our primary focus is on individuals, we encourage input and
involvement by their familes.Jefferson County Missouri residents and families who have members with
developmental disabilities such as:
Autism ~ Cerebral Palsy ~ Congenital Disabilities ~Down Syndrome
Nursing Home Compare Information  www.medicare.gov/NHCompare
A Non- Profit Public (Deviated Fixed-Route) Transportation Option for Jefferson County MO
SENIOR CITIZENS HANDBOOK  65 PAGES 18th Edition Legal Services of Eastern Missouri
Laws and Programs Affecting Senior Citizens in Missouri

updated MAY 2011 check www.lawmo.org for updates of this manual
National Caregivers Library: Tools for Caregivers Tools for Employers
Take health care into your own hands

The Affordable Care Act was passed by
Congress and then signed into law by the
President on March 23, 2010.
On June 28, 2012 the Supreme Court
rendered a final decision to uphold the
health care law.
Read the Law  ~ The Affordable Care Act,
Section by Section
Kellsie’s Hope was started by Kellsie Marchbanks during her second round of cancer treatment.
After her passing in June 2011 of Osteosarcoma, the Marchbanks family formed Kellsie’s Hope Foundation Inc, to celebrate the life of this
remarkable young woman and to continue the work she started from her hospital bed.

Kellsie’s Hope Foundation Inc, mission is to lighten the load of families that have children suffering from cancer by
offering support for trips, and gifts that might otherwise be unattainable to a child with cancer. Kellsie’s foundation
is also dedicated to raising funds to support research into childhood cancers such as hers and supporting the
nursing field with a nursing scholarship each year.

Corporation and individuals making donations to Kellsie’s Hope Foundation can be assured that their donations will help to make a child with
cancer life a little easier and to support the goal of putting an end to childhood cancer.

Kellsie’s Hope Foundation will assist families in need with gifting, funding trips, and will also fund cancer research and various programs and/or
other support for the medical field such as nursing scholarships.
Personal Care Attendant
The Art of Finding,
Keeping, or Being One
by Katie Rodriguez Banister
Local Earthquake Map

National Weather Service
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